#kNOw ATAXIA. Ataxia

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Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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Title: Cameryn Cobb An inspirational young advocate for Ataxia

Cameryn Cobb An inspirational young advocate for Ataxia

May 5th, 2019

I want to introduce you to Cameryn Cobb An inspirational young advocate for Ataxia. Listen in as Cameryn shares her story and what she is doing to make… Go to Episode

Lauren Sormani An inspirational young advocate for Ataxia a Rare Disease

April 23rd, 2019

Hi #kNOwATAXIA Nation. On this #thoughtfultuesday I want to introduce you to Lauren Sormani. An inspirational young advocate for Ataxia. Listen in as… Go to Episode

Expanded analysis of their data from their first clinical trial of troriluzole in SCA patients.

April 14th, 2019

This Podcast from the annual NAF Meeting in Las Vegas, March, 2019 features Gil L’Italien, PhD, Head of GHEOR and Epidemiology and Melissa Wolfe Beiner,… Go to Episode

#26 Kyle Bryant: Shifting Into High Gear at #2019AAC

April 9th, 2019

Hi #kNOwATAXIA Nation! Happy #thoughtfultuesday. Today, I’m sharing a podcast I did with my good friend Kyle Bryant. I was able to get a few minutes… Go to Episode